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Long-term patient-reported outcome measures after injury: National Trauma Research Action Plan (NTRAP) scoping review protocol
  1. Juan Pablo Herrera-Escobar1,2,
  2. Manuel A Castillo-Angeles1,2,
  3. Samia Y Osman1,
  4. Claudia P Orlas1,
  5. Mahin B Janjua3,
  6. Muhammad Abdullah-Arain3,
  7. Emma Reidy1,
  8. Molly P Jarman1,
  9. Michelle A Price4,
  10. Eileen M Bulger5,
  11. Deepika Nehra5,
  12. Adil H Haider1,3
  13. The National Trauma Research Action Plan (NTRAP) Investigators Group
    1. 1Center for Surgery and Public Health, Brigham and Women's Hospital, Boston, Massachusetts, USA
    2. 2Department of Surgery, Brigham and Women's Hospital, Boston, Massachusetts, USA
    3. 3Aga Khan University Medical College, Karachi, Pakistan
    4. 4Coalition for National Trauma Research, San Antonio, Texas, USA
    5. 5Department of Surgery, University of Washington, Seattle, Washington, USA
    1. Correspondence to Dr Juan Pablo Herrera-Escobar; jherreraescobar{at}bwh.harvard.edu

    Abstract

    Background A significant proportion of patients who survive traumatic injury continue to suffer impaired functional status and increased mortality long after discharge. However, despite the need to improve long-term outcomes, trauma registries in the USA do not collect data on outcomes or care processes after discharge. One of the main barriers is the lack of consensus regarding the optimal outcome metrics.

    Objectives To describe the methodology of a scoping review evaluating current evidence on the available measures for tracking functional and patient-reported outcomes after injury. The aim of the review was to identify and summarize measures that are being used to track long-term functional recovery and patient-reported outcomes among adults after injury.

    Methods A systematic search of PubMed and Embase will be performed using the search terms for the population (adult trauma patients), type of outcomes (long-term physical, mental, cognitive, and quality of life), and measures available to track them. Studies identified will be reviewed and assessed for relevance by at least two reviewers. Data will be extracted and summarized using descriptive statistics and a narrative synthesis of the results. This protocol is being reported in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) guidelines.

    Dissemination This scoping review will provide information regarding the currently available metrics for tracking functional and patient-reported outcomes after injury. The review will be presented to a multi-disciplinary stakeholder group that will evaluate these outcome metrics using an online Delphi approach to achieve consensus as part of the development of the National Trauma Research Action Plan (NTRAP). The results of this review will be presented at relevant national surgical conferences and published in peer-reviewed scientific journals.

    • patient-reported outcome measures
    • outcome assessment, healthcare
    • wounds and injuries
    http://creativecommons.org/licenses/by-nc/4.0/

    This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

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    Footnotes

    • Twitter @juanph19

    • Correction notice The credentials for Maxwell Braverman in the collaborators group has been corrected from MD to DO.

    • Collaborators The National Trauma Research Action Plan (NTRAP) Investigators Group: Pamela J Bixby, Jeffrey A Bailey, MD; Karen J Brasel, MD; Maxwell Braverman, DO; Zara R Cooper, MD; Todd W Costantini, MD; James R Ficke, MD; Nicole S Gibran, MD; Jonathan I Groner, MD; Adil H Haider, MD, MPH; Bellal A Joseph, MD; Craig D Newgard, MD; Edward S Shipper, MD; and Deborah M Stein, MD, MPH.

    • Contributors All authors contributed to the study design and article writing/provided critical review.

    • Funding This work is supported by the US Army Medical Research and Materiel Command under contract number W81XWH-18-C-0179. The views, opinions, and/or findings contained in this article are those of the authors and should not be construed as an official Department of the Army position, policy, or decision unless so designated by other documentation. This article has been reviewed by the National Trauma Research Action Plan (NTRAP) Publications Committee for scientific content and consistency of data interpretation with previous NTRAP publications.

    • Competing interests None declared.

    • Patient consent for publication Not required.

    • Ethics approval Research ethics approval is not required for this review.

    • Provenance and peer review Not commissioned; internally peer reviewed.

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