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Patient-centered outcomes research and the injured patient: a summary of application
  1. Laura N Godat1,
  2. Aaron R Jensen2,3,
  3. Deborah M Stein2,4
  4. The Coalition for National Trauma Research Scientific Advisory Committee
    1. 1Division of Trauma, Surgical Critical Care, Burns and Acute Care Surgery, UC San Diego Health, San Diego, California, USA
    2. 2Surgery, University of California San Francisco, San Francisco, California, USA
    3. 3UCSF Benioff Children's Hospital, San Francisco, California, USA
    4. 4Surgery, Zuckerberg San Francisco General Hospital and Trauma Center, San Francisco, CA, United States
    1. Correspondence to Dr Laura N Godat, Division of Trauma, Surgical Critical CAre, Burns and Acute Care Surgery, UC San Diego Health, San Diego, CA 92103, USA; lgodat{at}ucsd.edu

    Abstract

    As trauma surgeons, we focus on the immediate care and needs of the injured patient every day. Historically, trauma and injury research has focused on outcomes such as mortality, complications, and length of stay; and process metrics such as time to CT scan, resuscitation checklist frequencies, or venous thromboembolism prophylaxis rates. These outcomes are perceived by healthcare providers to be important, but patients likely have different perceptions of what outcomes are most important to measure and improve. True patient-centered outcomes research involves the healthcare providers, and the entire team of stakeholders including patients and the community. Understanding the process of stakeholder engagement and the barriers trauma researchers must overcome to effectively enter this field of research is important. This summary aims to inform the trauma research community on the basics of patient-centered outcomes research, priorities for funding from the Patient-Centered Outcomes Research Institute, resources for collaboration around patient-centered outcomes research, and a unique career development and training opportunity for early career trauma surgeons to develop a skill set in patient-centered outcomes research.

    http://creativecommons.org/licenses/by-nc/4.0/

    This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

    https://doi.org/10.1136/tsaco-2019-000422

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      Footnotes

      • Collaborators The Coalition for National Trauma Research Scientific Advisory Committee: Saman Arbabi, MD, FACS (1); Eileen M. Bulger, MD, FACS (1); Mitchell J Cohen, MD, FACS (2); Todd W Costantini, MD, FACS (3); Marie M Crandall, MD, MPH, FACS (4); Rochelle A Dicker, MD, FACS (5); Elliott R Haut, MD, PhD, FACS (6–8); Bellal Joseph, MD, FACS (9); Rosemary A Kozar, MD, PhD, FACS (10); Ajai K Malhotra, MD, FACS (11); Avery B Nathens, MD, PhD, FRCS, FACS (12); Raminder Nirula, MD, MPH, FACS (13); Michelle A Price, PhD, MEd (14); Jason W Smith, MD, FACS (15); Deborah M Stein, MD, MPH, FACS, FCCM (16); Ben L Zarzaur, MD, MPH, FACS (17). From the: (1) University of Washington; (2) University of Colorado; (3) Division of Trauma, Surgical Critical Care and Acute Care Surgery, Department of Surgery, UC San Diego School of Medicine; (4) University of Florida College of Medicine Jacksonville; (5) Departments of Surgery and Anesthesia, UCLA Geffen School of Medicine; (6) Division of Acute Care Surgery, Departments of Surgery, Anesthesiology and Critical Care Medicine and Emergency Medicine, The Johns Hopkins University School of Medicine; (7) The Armstrong Institute for Patient Safety and Quality, Johns Hopkins Medicine; (8) Department of Health Policy and Management, The Johns Hopkins Bloomberg School of Public Health; (9) University of Arizona; (10) University of Maryland; (11) Division of Acute Care Surgery, Department of Surgery, University of Vermont; (12) Department of Surgery, University of Toronto; (13) Department of Surgery, University of Utah; (14) National Trauma Institute; (15) University of Louisville; (16) Division of Trauma and Critical Care Surgery, Department of Surgery, University of California-San Francisco; (17) Department of Surgery, University of Wisconsin School of Medicine and Public Health.

      • Contributors Article creation and major revisions: LNG, ARJ, DMS. Critical review: CNTR–Scientific Advisory Committee.

      • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

      • Competing interests None declared.

      • Patient consent for publication Not required.

      • Provenance and peer review Not commissioned; internally peer reviewed.