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Review
Patient-reported outcomes in trauma: a scoping study of published research
  1. Graeme M Rosenberg1,
  2. Christopher Stave2,
  3. David A Spain1,
  4. Thomas G Weiser1,3
  1. 1 Department of Surgery, Section of Acute Care Surgery, Stanford University, Stanford, California, USA
  2. 2 Lane Medical Library, Stanford University, Stanford, California, USA
  3. 3 Department of Clinical Surgery, University of Edinburgh, Royal Infirmary of Edinburgh, Edinburgh, UK
  1. Correspondence to Dr Graeme M Rosenberg, Department of Surgery, Stanford University, Stanford, CA 94305, USA; gmr87{at}stanford.edu

Abstract

More people are surviving traumatic injury, but disability and reduced quality of life are frequent. Investigators are now focusing on patient-reported outcomes (PROs) to better understand this problem. We performed a scoping study of the literature to explore trends in the study of PROs after injury. The volume of published literature on PROs after injury has consistently increased, but use of measurement tool and categorization of publications are inconsistent. Journal keyword patterns are inconsistent and likely limit the effective dissemination of important findings. In studies of hospitalized trauma patients, more than 100 unique measurement tools were used, and trauma-specific measures were used in fewer than 5% of studies. International investigators are more consistent than those in the USAin the use of validated, classic measurement tools such as the Short-Form 36 and the EuroQoL Five-Dimension tools. Uniform use of measurement tools would help improve the quality and comparability of research on PROs, and trauma-specific measures would enhance the study of long-term injury outcomes.

  • patient reported outcomes
  • trauma/ critical care
  • trauma systems and outcomes
  • patient reported outcome measures

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0

https://doi.org/10.1136/tsaco-2018-000202

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    Footnotes

    • Contributors GMR was responsible for conception and design; data collection/abstraction; data analysis; interpretation of analysis; drafting the article; and critical revision of important intellectual content. CS was responsible for literature search, including creation of detailed search language and confirmation of included publication type; drafting of pertinent methodological content; and critical revision of important intellectual content. DAS was responsible for conception and design; interpretation of analysis; and critical revision of important intellectual content. TGW was responsible for conception and design; methodological oversight; interpretation of analysis; and critical revision of important intellectual content. All authors have made substantial contributions to the final approval of the submitted version.

    • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

    • Competing interests None declared.

    • Patient consent Not required.

    • Provenance and peer review Not commissioned; externally peer reviewed.

    • Data sharing statement Detailed search language is available in the online supplementary online content to access all pertinent articles.