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Launch of the National Trauma Research Repository coincides with new data sharing requirements
  1. Michelle A Price1,
  2. Pam J Bixby1,
  3. Monica J Phillips1,
  4. Gregory J Beilman2,
  5. Eileen M Bulger3,
  6. Michael R Davis4,
  7. Matthew J McAuliffe5,
  8. Todd E Rasmussen6,
  9. Jose Salinas7,
  10. Sharon L Smith1,
  11. Mary Ann Spott8,
  12. Leonard J Weireter9,
  13. Donald H Jenkins10
  1. 1 National Trauma Institute, San Antonio, Texas, USA
  2. 2 Department of Surgery, University of Minnesota, Minneapolis, Minnesota, USA
  3. 3 Department of Surgery, University of Washington, Seattle, Washington, USA
  4. 4 US Combat Casualty Care Research Program, US Army Medical Research and Materiel Command, Ft Detrick, Maryland, USA
  5. 5 Center for Information Technology, National Institutes of Health, Bethesda, Maryland, USA
  6. 6 F Edward Hébert School of Medicine, Uniformed Services University of the Health Sciences, Bethesda, Maryland, USA
  7. 7 Clinical Decision Support and Automation Research, US Army Institute of Surgical Research, JBSA Fort Sam Houston, San Antonio, Texas, USA
  8. 8 Joint Trauma System, JBSA Fort Sam Houston, San Antonio, Texas, USA
  9. 9 Department of Surgery, Eastern Virginia Medical School, Norfolk, Virginia, USA
  10. 10 Department of Surgery, University of Texas Health – San Antonio, San Antonio, Texas, USA
  1. Correspondence to Dr Michelle A Price; Michelle{at}NatTrauma.org

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NTRR is launching

Previous analyses of research data have shown that many trauma studies cannot be replicated or validated due to a variety of factors, including lack of access to study data, lack of access to protocol information, and inability to replicate procedures used in the study. New data sharing rules for federally funded studies have been put in place to address factors associated with this issue.

To address these new data sharing requirements, beginning this month, investigators conducting research on trauma and critical care will be able to maximize the utility of the data they produce with the launch of the National Trauma Research Repository (NTRR). The system was developed as a resource to support new and emerging data sharing needs within the trauma research community and is envisioned to be a key piece of the national trauma research infrastructure. It is funded by the Department of Defense (DoD) and developed by the National Trauma Institute (NTI) to promote collaboration, accelerate research, and advance knowledge on the treatment of trauma. When it becomes fully functional, the NTRR will be a comprehensive repository offering thousands of data points from hundreds of studies, enabling investigators to query across studies for their own research objectives.

The NTRR was developed by trauma researchers for trauma researchers. A national committee was convened of civilian and military trauma researchers and stakeholder organizations to define the functional requirements of the repository that would best serve investigators.1 The NTRR allows users to peruse available data elements, study data sets, and supporting documentation (eg, protocols, consent forms, data dictionaries). Investigators contributing data to the NTRR can upload completed data sets and supporting documents at the completion of a study or as the study is being conducted. All studies will submit core data elements and study metadata (information about the study). Use of …

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